3 Monthly Update

Welcome to the latest update!

Today I had the 3 monthly call from my nephrologist. 

I am always nervous before he calls, worrying he might think I am waffling on but now its over I am feeling reassured even though he also said I have a least a decade before complete failure, I want more time 😂. He has a way of explaining things and today I felt heard.

One week before the call I will get my bloods. Here are the concerning results this time around:

Gfr 27

Calcium 2.64 mmol/l

Epo 7.6 iu/l

Calcium I was told is nothing to worry about so I will keep taking the active D. 

Until my haemoglobin dips to 100 I will gain no benefit from epo injections, at least I have a number to focus on.

Grf... well it's rubbish isnt it?! But I am told it is going down slowly and as I said previously I have about a decade, which always makes 10 years sound longer, until I potentially reach full failure!

I will be trying a new Bp Med called Ramipril. See my other post about experience with sartans that I have been on. As I said in that post I may end up back on the Sartans, I have learnt not to be too hopeful with new meds. I am clearly sensitive to many of them.

Thank you for reading :)